Genome BC is thrilled to present our ongoing series on Data Literacy. This series aims to bring national and international experts together to help deepen our understanding of different data related initiatives, standards and resources.
Developing a better shared understanding of benefits and risks related to data will help advance data collection, sharing and use in sectors such as health, agrifood and natural resources. For example, much of the datasets resulting from Genome BC funded projects have value and utility beyond the purpose for which they are originally generated. Unlocking their potential is an interdisciplinary and translational challenge which requires the engagement of multiple stakeholders including funders, data providers, innovators, researchers and end users.
What you'll learn in this session:
- What the First Nations Principles of ownership, control, access, and possession (OCAP®) are
- Key concepts of Indigenous data sovereignty, data governance and data management
- How OCAP supports strong information governance on the path to First Nations data sovereignty
- How to think about personal rights vs. collective rights when considering Indigenous Peoples and population data
- What the term "distinctions-based relationships" means in a research environment
In addition, Gwen is currently assisting Indigenous Services Canada (ISC) in the implementation of their Indigenous Community Development National Strategy. She has also developed and instructed First Nation Studies courses at the elementary, secondary, and college levels and continues to function as a public educator.
As a member of the First Nations Health Council, Gwen helped negotiate the transfer of Health Canada’s BC Region First Nations and Inuit Health Branch (FNIHB) to First Nations control. Gwen’s formal education is in Business Administration and she owns her own small business as a community planner, facilitator/trainer, artist and curriculum developer